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ADDITIONAL LINKS
                  
 ADDITIONAL LINKS

 

   Background & Educational Information

·         Center for Information and Study on Clinical Research Participation

·         CenterWatch Background Information on Clinical Resarch

·         Clinical Trials Education Series – The National Cancer Institute (NCI) has developed the Clinical Trials Education Series (CTES). The CTES is a collection of more than 20 multimedia resources to educate cancer patients, health care professionals, advocates, and the general public about cancer prevention and treatment clinical trials. The series includes materials in a variety of formats, including workbooks, videos, booklets, and brochures.

·         Medicine Net  – This is a good source that provides a description of medical terminology for assistance when reviewing an informed consent.

·         NIH Institute and Center Resources – National Institutes of Health

·         Participate in Clinical Studies – NIH Clinical Center

·         Participating in Clinical Trials – NIH Senior Health

·         Protecting Participants in Clinical Trials: Links to NCI Materials – National Cancer Institute

·         Questions to Ask Before Participating in a Research Study – Office for Human Research Participants

·         Should I Enter a Clinical Trial? A Patient Reference Guide for Adults with a Serious or Life-Threatening Illness

 

   Listings of Clinical Trials

·         Center Watch Clinical Trials Listing Service – A site including listings of industry and government-sponsored clinical trials, as well as new drug therapies in research or recently approved by the FDA. Information on how to sign up for a clinical trial.

·         Clinical Connection – Receive notification when a new US clinical trial that you are interested in becomes available.

·         Clinical Trials.gov – The U.S. National Institutes of Health, through its National Library of Medicine, has developed ClinicalTrials.gov to provide patients, family members and members of the public current information about clinical research studies.  The website is updated regularly with information about federally and privately supported clinical research. ClinicalTrials.gov gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details.

·         GPGP.net – Worldwide information for Clinical Trial participants, including the current clinical trials being conducted and their locations.

·         National Health Council Membership Roster – Links to web sites of more than 115 Council members, many of which include information on research studies.

·        Participate in Research Programs – Alpha-1 Foundation

·        CISCRP Search Engine

 

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   Children & Research

·         Children’s Assent to Clinical Trial Participation – National Cancer Institute

·         FDA Kids Home Page – This is an interactive and educational program for kids and parents with information about different FDA regulated products.

 

   Mental Health Research

·         A Participants Guide to Mental Health Clinical Research – American Association for Public Opinion Research. An executive summary highlights three key points: minimal risk, benefits of survey research, and consent.

 

   Social & Behavioral Science Research

·         National Science Foundation FAQs – An explanation of the types of harm that could result from social and behavioral science research.

·         Protection of Human Participants in Survey Research: A Source Document for Institutional Review Boards – American Association for Public Opinion Research. An executive summary highlights three key points: minimal risk, benefits of survey research, and consent.

 

   Vulnerable Populations

·         CISCRP – Research facts for minority populations.

·         FDA Office of Women’s Health Science Program: Pregnancy Initiatives

·         Federal Bureau of Prisons

·        Minorities in Research

·        Office of Research on Women’s Health: Pregnant Women

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